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Somos una organización, sin ánimo de lucro, que nace en 1997 con el propósito de contribuir a la mejora de la calidad de vida de los afectados, somos la única asociación nacional dedicada a la neurofibromatosis.
Nuestra actividad la realiza un equipo de personas compuesto, en su mayoría, por voluntarios y miembros de la Junta Directiva que no perciben ninguna retribución por su trabajo.
La asociación tiene en plantilla personal especializado en neurofibromatosis, tanto trabajadores sociales como psicólogos, que desarrollan los distintos programas dirigidos a los afectados y familia, así como a la formación y la orientación social.
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Presidencia
Pertenece a la Fundación Proyecto Neurofibromatosis
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Vicepresidencia
Pertenece a la Fundación Proyecto Neurofibromatosis
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Secretaría
Pertenece a la Fundación Proyecto Neurofibromatosis
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Administrativa
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Relaciones Externas
Pertenece a la Fundación Proyecto Neurofibromatosis
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Tesorería
Pertenece a la Fundación Proyecto Neurofibromatosis
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Trabajo Social
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Psicología
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Psicología
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[av_heading heading=’Organigrama’ tag=’h3′ link_apply=» link=» link_target=» style=» size=» subheading_active=» subheading_size=’15’ margin=» padding=’10’ color=» custom_font=» custom_class=» id=» admin_preview_bg=» av-desktop-hide=» av-medium-hide=» av-small-hide=» av-mini-hide=» av-medium-font-size-title=» av-small-font-size-title=» av-mini-font-size-title=» av-medium-font-size=» av-small-font-size=» av-mini-font-size=»][/av_heading]
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